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Title: Advanced Breast Cancer: A Guide to Living with Metastatic Disease, 2nd Edition (Patient-Centered Guides) by Musa Mayer ISBN: 1-56592-522-X Publisher: Patient-Centered Guides Pub. Date: September, 1998 Format: Paperback Volumes: 1 List Price(USD): $24.95 |
Average Customer Rating: 4.55 (11 reviews)
Rating: 5
Summary: A book for everyone touched by ANY catastrophic disease.
Comment: This book by Musa Mayer is one of the most profound resources I have ever read in my life. I first bought 10 copies of the original edition "Holding Tight, Letting Go" , with Barb Pender, on the front of it. I never go anywhere without one or more of my remaining 3 copies of "Holding Tight, Letting Go" (now available as Advanced Breast Cancer: A Guide to Living with Metastatic Disease). It is not just a resource for women with breast cancer - it is a resource for anyone who wants to streamline their life priorities. It has helped me immensely with how to help care for my 97 year old grandmother (who has heart disease, pancreatic cancer and several strokes). There are profound similarities between persons who are elderly and the plight of women and men trying to deal with breast cancer.
As an allied healthcare worker (nuclear medicine technologist) this book has even changed how I deal with ALL of my patients in nuclear medicine, as Musa's friends speak from the pages as wise, kind, sages with messages for the world. I have worked in healthcare for 20 years and thought I had a very firm grasp of patient care and a feel for what was important. Musa's book redefined all that I knew. I think the word for this type of experience is epiphany. Now, when I hear docs at my hospital and at my nuclear medicine meetings try to give guesses about what their patients are most interested in - well you guessed it - I whip out my copy of Musa's book (I explain to them about the name change) and I let Musa and some of my friends speak for themselves as to what is real.. Docs are nothing short of awe struck that Musa could illicit literally hundreds of responses to her internet queries, when they, as life-savers, only get a scant few responses to surveys they pass out to their patients and their families.
As painful as this labor of love must have been for Musa, my guess is that divine intervention decided that someone should bear witness for an extraordinary group of warriors and their beloved troops. It is more than mere coincidence to me that Musa's name is so similar to the famed samurai warrior, Musashi, who tailored his tactics to the mission at hand, who knew the value of preparedness and the importance of character, and whose leadership strategies triumphed in life-or-death situatoins whereby if a battle was lost, the spirit of the warrior never was. This is the spirit of Musa Mayer's book.
I would dare say that there is no one alive who could read this book without being uplifted, informed and intrigued with knowledge and debth as to how to live when life deals you a difficult and unexpected hand. No matter what the medical problem, this text has information that translates so smoothly that it is a wonder that it has not been rewritten to apply to anyone of any diagnosis (and to those who love and care for them).
Toya T. Powell
Rating: 5
Summary: A realistic but gentle approach to a scary disease
Comment: Breast cancer is so much more complicated than removing the breast(s). I have a feeling that many people don't figure this out until they have been diagnosed with it. Then, you have to take a crash course in Cancer 101. It is intimidating and scary to make decisions about something which you know nothing about.
Musa makes it easy to comprehend a lot of the technical information. She has a way of breaking down the many facets of this disease, and bringing order to a complex issue. It is easier to digest so much information and make informed decisions when someone has completed an outline of the puzzle for you.
As an early stage breast cancer survivor myself, I was apprehensive about reading this book. Why borrow trouble; ignorance is bliss. But, considering that my mother was diagnosed with metastatic breast cancer less than a year ago, reality seemed like the viable option for me.
Fear of breast cancer returning or spreading can be just as difficult as treatment for cancer. I felt calmer after reading about some of the people Musa profiled in her book. It's hard to explain this in a book review, but sometimes people have a way of saying things (or writing them) that makes them less overwhelming. The way that Musa has "explained" advanced breast cancer made it easier for me to relax and realize that there are just some things that you have to deal with...and you can.
Musa's book provided validation for my mother that she had made educated treatment decisions. It gave me a clearer picture of my mother's disease, and most importantly - a lot of hope. I probably won't have to deal with breast cancer again. If I do, I will be prepared (and armed) with valuable information.
Rating: 5
Summary: Down to earth and validating
Comment: I bought this book two years ago, right after my diagnosis of breast cancer and after I received my pathology report - which indicated I was apt to end up with recurrence or spread. This book was not at all what I expected. I was expecting a guide to treatment options - dry and factual. What I got instead - showed that others had dealt with this very difficult issue and so could I, if need be. I passed the book on to a friend already in this position. Now, two years later, I am facing metastatic disease myself and have bought my own copy of the book again. Knowing that others have gone before me makes it easier for me to handle myself. Thank you, Musa.
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Title: After Breast Cancer by Musa Mayer ISBN: 0596507836 Publisher: Patient-Centered Guides Pub. Date: 03 March, 2003 List Price(USD): $14.95 |
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Title: Holding Tight, Letting Go: Living with Metastatic Breast Cancer by Musa Mayer ISBN: 1565922549 Publisher: O'Reilly & Associates Pub. Date: 01 September, 1997 List Price(USD): $19.95 |
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Title: Her-2 : The Making of Herceptin, a Revolutionary Treatment for Breast Cancer by Robert Bazell ISBN: 0812991842 Publisher: Random House Pub. Date: 25 August, 1998 List Price(USD): $15.00 |
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Title: Living Beyond Breast Cancer : A Survivor's Guide for When Treatment Ends and the Rest of Your Life Begins by Marisa Weiss, Ellen Weiss ISBN: 0812930665 Publisher: Three Rivers Press Pub. Date: 14 September, 1998 List Price(USD): $17.00 |
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Title: Examining Myself: One Woman's Story of Breast Cancer Treatment and Recovery by Musa Mayer ISBN: 0571198457 Publisher: Faber & Faber Pub. Date: 01 October, 1994 List Price(USD): $10.95 |
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