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Title: Special Siblings: Growing Up With Someone with a Disability by Mary McHugh ISBN: 1-55766-607-5 Publisher: Brookes Publishing Company Pub. Date: 01 September, 2002 Format: Paperback Volumes: 1 List Price(USD): $21.95 |
Average Customer Rating: 4.29 (7 reviews)
Rating: 5
Summary: A must read for anyone with a disabled sibling.
Comment: First of all, I really wish that people who have not grown up with a disabled sibling would not write negative reviews of this book because they just don't know what it is like. My sister had polio and her illness and subsequent operations took all of my families' resources both financial and emotional. I grew up thinking that I was unimportant and that maybe if I was sick too, I would get attention. My earliest thoughts were those of wishing that I would just die so I didn't have to feel so bad/guilty all the time. Kids that grow up with disabled siblings often feel that they did something wrong to cause the disability. My middle sister and I both felt that way, yet we weren't even born when it happened.
Ms. McHugh has written an incredibly honest book that will be greatly appreciated by anyone else in this situation. We live in a world of silence and isolation, how can you ever complain when you can walk, talk, hear, etc. You would be considered extremely selfish. The life of a sibling of a disabled person is very distorted.
Thank you, Ms. McHugh for your courage.
Rating: 1
Summary: A different point of view.....
Comment: There is a great need for enlightened books on the topic of growing up with a sibling with a disability. Unfortunately, this book does not answer that need.
Ms. McHugh feels the common denominator between her and the other siblings who lament their sibling is the issue of disability. In fact, the common demoninator is self-pity. Most of us in this world have issues with their childhood, whether they be a sibling with a handicap, an abusive parent, a dead beat dad, or an overachieving brother. We all carry many scars. It is not the challenges that we face, but what we make of those challenges.
Having a loved one with a disability does not change our essential truth. Yes, it may be difficult at times, but life is, difficult that is. The challenge of facing a disability on a daily basis only makes you more of what you already are. Sometimes that's good, in this case it's very sad.
Ms. McHugh may be the sibling of a man with a disability. But she is the one truly handicapped. Handicapped by her inability to stop using the disability as a crutch. The disability nor your brother are the source of your pain, anger and suffering. It is the inability to deal with it in a productive manner.
The next book I'd like to read from Ms. McHugh would be about people with disabilities and how they tolerate the whiny, self-important, shallow ramblings of their very confused siblings.
Rating: 5
Summary: Mary McHugh knows how to personally touch people
Comment: I bought this book because I have a child with a disability, and I wanted to do what I can to be helpful to my three other children. It was a wonderful read! It reassured me, which is something all mothers need a lot of. It also reminded me that vigilance about sibling excesses is in order. After reading it, I reminded my children that they don't have to grow up to be superstars in some kind of effort to compensate for what my one child lacks.
I enjoyed the author's willingness to be so honest about her feelings, yet even when revealing negative feelings, she asserted a positive spin by contrasting her feelings with more positive feelings of others. It's clear that much of her difficulty had to do with being raised in a different time -- when there was little help, and when disability was considered shameful and secret. My favorite section of this book is the discussion of the common phenomenon of siblings entering the helping professions as adults. She has a fresh and interesting take on this topic.
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Title: The Normal One: Life With a Difficult or Damaged Sibling by Jeanne Safer ISBN: 0385337566 Publisher: Delta Pub. Date: 30 September, 2003 List Price(USD): $12.95 |
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Title: Living With a Brother or Sister With Special Needs: A Book for Sibs by Donald J. Meyer, Patricia Vadasy, Donald Meyer ISBN: 0295975474 Publisher: University of Washington Press Pub. Date: 01 November, 1996 List Price(USD): $16.95 |
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Title: What About Me? Growing Up with a Developmentally Disabled Sibling by Bryna Siegel, Stuart Silverstein, Glen R. Elliott ISBN: 073820630X Publisher: Perseus Publishing Pub. Date: September, 2001 List Price(USD): $24.00 |
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Title: Views from Our Shoes: Growing Up With a Brother or Sister With Special Needs by Donald J. Meyer, Cary Pillo ISBN: 0933149980 Publisher: Woodbine House Pub. Date: 01 June, 1997 List Price(USD): $14.95 |
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Title: Sibshops: Workshops for Siblings of Children With Special Needs by Donald J. Meyer, Patricia F. Vadasy ISBN: 1557661693 Publisher: Brookes Publishing Company Pub. Date: 01 August, 1994 List Price(USD): $32.00 |
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