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Title: Choosing Naia: A Family's Journey by Mitchell Zuckoff ISBN: 0-8070-2817-7 Publisher: Beacon Press Pub. Date: 01 September, 2003 Format: Paperback Volumes: 1 List Price(USD): $16.00 |
Average Customer Rating: 4.17 (6 reviews)
Rating: 5
Summary: been there
Comment: I just finished reading "Choosing Naia" and very much enjoyed it. I have a six year old boy with DS who was diagnosed when I was 20-21 weeks pregnant. I was interesting to see some of the similarites between my families situation and reactions and the Fairchilds. I would highly reccommend this book. I do not feel there was undue emphanise on the potenital abililies or inabilities of the unborn child. I have a hard time believing anyone in this situation would not have those thoughts. I feel everyone wants a child who is happy ,interactive and to some degree self suffient. The issue of abortion was explored and I found it interesting to profile a couple who had made the decision to terminate. It is amazing the technology availble to diagnose DS during pregnancy but I personally wished I had not known before the birth of my son. Knowing ahead of time ruined the joy of my first pregnancy He was born without any health problems which was a blessing. Mattie is not what I would consider high functioning (not talking or potty trained) but he is his own person and can't imagine life without him. Having a child with DS is not the end of the world or even close.
Rating: 1
Summary: I do not recommend "Choosing Naia"
Comment: I was very disappointed with "Choosing Naia". I would not recommend this book to anyone expecting a child with Down syndrome, or even to someone who already has a child with Down syndrome. I found the style dry and uninteresting; I found the emphasis on "how retarded" she'd be (and the end implication that the only reason the story had a happy ending was because of her cognition skills) extremely disturbing. Despite the fact that the author has put everything ever written about Down syndrome into this book (although with an emphasis on eugenics and abortion), I would not recommend this to students. People, including those with Down syndrome, aren't worthy because of their cognitive or language abilities. They are worthy because they are human beings. Kids are kids. If you want to know more about Down syndrome, meet a few people who happen to have it. Read stories from parents, not from a journalist. And give this book a miss.
Rating: 5
Summary: A couple must make a difficult choice.
Comment: Greg and Tierney Fairchild are a well-educated, middle class couple who are thrilled to discover that Tierney is pregnant. Tierney undergoes all of the usual tests, and the Fairchilds are stunned to discover that not only does their unborn child have a hole in her heart, but that she may also be born with Down syndrome.
Investigative reporter Mitchell Zuckoff spent hundreds of hours with Tierney and Greg, and the result is "Choosing Naia," a book that began as a series of articles in the Boston Globe. This book is not only the story of a couple's arduous journey, but it is also an eye-opening look at the history of Down syndrome and a good explanation for the layman of what such a diagnosis means to a child and his parents.
Zuckoff's conversational style makes "Choosing Naia" flow smoothly. Throughout the book, the author provides valuable information on such topics as genetic testing and counseling, early intervention for children with Down syndrome, and the importance of networking in order to get the most valuable information and assistance for your child. Another factor that makes "Choosing Naia" stand out is its unflinching honesty. It is a tribute to the Fairchilds that they allowed their doubts, fears and uncertainties to be recorded for posterity. They come across as vulnerable, yet strong and determined, real people who have decided to meet a difficult challenge.
I highly recommend this touching and informative book. "Choosing Naia" reminds us that in an age of amazing technology and prenatal testing, we are privy to information that may make our lives more complicated than ever before.
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Title: Expecting Adam: A True Story of Birth, Rebirth, and Everyday Magic by Martha Beck ISBN: 0425174484 Publisher: Berkley Publishing Group Pub. Date: 08 August, 2000 List Price(USD): $13.95 |
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Title: Life As We Know It: A Father, a Family, and an Exceptional Child by Michael Berube ISBN: 0679758666 Publisher: Vintage Books USA Pub. Date: 01 April, 1998 List Price(USD): $14.95 |
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Title: Angel Behind the Rocking Chair : Stories of Hope in Unexpected Places by Pam Vredevelt ISBN: 157673644X Publisher: Multnomah Pub. Date: 08 July, 1999 List Price(USD): $9.99 |
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Title: Count Us In: Growing Up with Down Syndrome by Jason Kingsley, Mitchell Levitz ISBN: 015622660X Publisher: Harvest Books Pub. Date: 01 January, 1994 List Price(USD): $13.00 |
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Title: The Down Syndrome Nutrition Handbook: A Guide to Promoting Healthy Lifestyles by Joan E. Guthrie Medlen, R. D. Medlen ISBN: 1890627232 Publisher: Woodbine House Pub. Date: 01 November, 2002 List Price(USD): $19.95 |
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