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Title: Me & Sarcoidosis: A Lifetime Partnership : Revised Edition A Patients Story About Living With A Chronic Health Condition by Gilbert L Barr ISBN: 0-595-22457-1 Publisher: Writers Club Press Pub. Date: 09 April, 2002 Format: Paperback Volumes: 1 List Price(USD): $20.95 |
Average Customer Rating: 3.75 (4 reviews)
Rating: 5
Summary: Sarcoidosis Caregiver In Michigan
Comment: After reading an interview the Diabetes Insipidus Foundation published in their newsletter with Mr. Barr and seeing him on a Detroit TV newscast, I purchased his book and found it to be very touching, inspiring and informational in regard to understanding what patients with chronic health conditions experience. My sister suffers from sarcoidosis and after reading this book I'm able to better understand the frustrations she endures on a daily basis. Mr. Barr's straight forward, direct approach in telling his story is refreshing in this day and age. He holds nothing back! My sister also found the book something she could easily relate to and currently another friend, who also suffers from this disease, can't put it down. We need more books that tell the patient's point of view. I'm glad Mr. Barr had the courage to tell his story!
Rating: 4
Summary: Reader from Atlanta GA
Comment: I just completed the revised edition (which had the editing issues corrected) as other members of my family are now reading it as well. It was enlightening to finally read a book from an average person that must deal with the same experiences as I do. I was finally diagnosed with sarcoidosis in my lungs and on my skin in 1993. The author does not flinch from outlining his most personal symptoms in a very direct approach. Considering he spent over 4 years being misdiagnosed there were several negative experiences however I did not feel that he felt any self-pity or unjustly bashed the professionals he was exposed to but instead just told the truth and in the end gives credit to those who were able to help him. For me it was a roller coaster of emotions. I appreciate the fact that he gave much due respect to God, his loving family and those who supported him. Although the book is over 300 pages, it touches on every aspect of living with chronic health conditions and the physical and mental stress involved. I admire Mr. Barr's courage to tell his story in such a direct manner and open up to the world. The only thing I found insulting about this book were some of the experiences we all experience and they needed to be told.
Rating: 1
Summary: Me & Sarcoidosis: A Lifetime Partnership
Comment: Since my husband has sarcoidosis of the lungs and central nervous system, I was quite excited to find another book on this subject. I read Karen Duffy's book when it was first released, and I enjoyed it immensely. This book, however, is an insult to sarcoidosis patients and their families. This book contains the worst grammar and spelling I have ever seen in print. I cannot believe that I spent 20 dollars to read someone's account of this disease; someone who obviously feels the need to criticize everyone he has ever encountered who has not treated him as he is extraordinary because he is ill. My husband and I have approached treating this disease with humility, and therefore, have been treated with respect from all the professionals we have encountered during this long journey. We have a good attitude and don't expect special treatment by anyone. Of course, it can be extremely frustrating to not "be cured" of this disease, however, my husband has never taken out his frustration on anyone. The only positive experience of reading this book has been that I now have a much greater respect for my husband and the manner in which he is coping with sarcoidosis.
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Title: The Official Patient's Sourcebook on Sarcoidosis by Icon Health Publications, James N. Parker, Philip M. Parker ISBN: 0597831564 Publisher: ICON Health Publications Pub. Date: June, 2002 List Price(USD): $24.95 |
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Title: Model Patient : My Life As an Incurable Wise-Ass by Karen Duffy ISBN: 0060957271 Publisher: Perennial Pub. Date: 13 November, 2001 List Price(USD): $13.00 |
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Title: Coping with Prednisone : It May Work Miracles, But How Do You Handle the Side Effects (*And Other Cortisone-Related Medicines) by Eugenia Zukerman, Julie R. Ingelfinger ISBN: 0312195702 Publisher: Griffin Trade Paperback Pub. Date: 15 August, 1998 List Price(USD): $13.95 |
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Title: Living Well with Autoimmune Disease: What Your Doctor Doesn't Tell You...That You Need to Know by Mary J. Shomon ISBN: 0060938196 Publisher: HarperResource Pub. Date: 08 October, 2002 List Price(USD): $14.95 |
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Title: Color Me Sensitive: A Woman's Journey to Find Herself Through Disease by June Saunders Grayson ISBN: 1403362998 Publisher: 1stBooks Library Pub. Date: October, 2002 List Price(USD): $11.45 |
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