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Speaking Our Minds : Personal Reflections from Individuals with Alzheimer's

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Title: Speaking Our Minds : Personal Reflections from Individuals with Alzheimer's
by Lisa Snyder
ISBN: 0-7167-4010-9
Publisher: W H Freeman & Co.
Pub. Date: 21 February, 2000
Format: Paperback
Volumes: 1
List Price(USD): $12.95
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Average Customer Rating: 4.5 (8 reviews)

Customer Reviews

Rating: 5
Summary: Anecdotes from the words of Diagnosed ALZ people
Comment: Being recently dianosed with CRS, see my review of Shenk's "The Forgetting," I want to know from others who have been there, what is ahead of me. I am a member of two ALZ support groups, one mixed, and one for ALZers by themselves. Recently at a social party where I was experiencing data overload, I confided to a woman of my own age, that I was diagnosed with ALZ. She immediately said she was also, and we immediately began comparing symptoms, just as other ALZers do when their caregivers are not around!
This book fullfills my needs for the stories from those who are there. No story fits me exactly, yet parts of each show me that I am not unique, that I need not fit the popular mold, e.g. "Iris," of where and who I am. Just as the 42 stories at the rear of "Alcoholics Anonymous" give understanding and light to those afflicted with another incurable pathology, so do these bring hope and understanding to me: "I Am Not Alone!"
There is an abundance of tomes dealing with the diagnosis and care of ALZers. Those few books which let one ALZ speak to another ALZ are far between. ["Living in the Labyrinth" by McGowan is another in this small select company.]
If you, a friend, or a relative has ever been given a tentative or conclusive diagnosis of ALZ, run, don't walk, to get a copy of "Speaking Our Minds" to them. If like me, their reading capabilities have substantially deteriiorated, please, please read it to them!

"Reverse Mike"

Rating: 3
Summary: Interesting Book
Comment: An interesting read that provides insight into the mind of Alzheimer patients-nicely done..

Rating: 3
Summary: Cases are too similar
Comment: I want to know whether my mother is suffering, I want to know whether she is aware of her disease, and if so, what does she think of it. I want to know what, if anything, I can say or do to comfort her.

And after reading Lisa Snyder's book I still don't have a clue.

Mom's symptoms of Alzheimer's appeared a year and a half ago. She can not, or will not, talk about it. And in this short time her condition has deteriorated mightily. But she isn't like any of the subjects in this book. The people Lisa writes about seem to be at an earlier stage, and to be very self-aware and open to concepts such as therapy. I cannot draw much from their stories.

That said, the book is well written and interesting, and it gives me some comfort to read of people who are living fairly well with this very sad disease. For many readers this will be a 4- or 5- star book, but not for me, not at this time.

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